Archive for October 2012

Because why NOT have a drink?

October 31, 2012

When you’re in the lobby of the hotel, and you can pretend it’s your own dining room where your friends are hanging out?  Merlot, Cosmo, Martini, Chablis . . . oh my.


John Martinson, all the way from Wisconsin.

Sue Pendleton is talking with Karen Miner, her husband Jay is talking with John, and I’m almost out of juice (battery, not Merlot) so I’ll post this and check in once I’m powered up.


Registration starts today.

October 31, 2012

One thing I love about w2w is getting to see old friends.  I remember the first time I came to this conference I didn’t know a soul, except through CareCure.  It was a little like I imagine it would be to meet characters in my favorite novels . . . wait, this is how you look?  I always imagined you with dark hair!  I was nervous and shy.  Nowadays it’s like going to a family reunion.

For all of you who can’t be here in person, NEXT YEAR for sure & welcome to the virtual conference.

For everybody on their way right now, HURRY UP!

For everybody already here, YAY!  Let’s hang out . . . (we’re in 923)  Shout out to new friends Cindy & Randy from South Dakota and Heather & Colin from Alabama; thx for letting me and Bruce barge in your meals. 🙂

Here’s a photo of the beach I’m not going to today, unless I figure out how to be in two places at once.Image

Tuesday afternoon and the tribes are gathering!

October 30, 2012

I’m writing this from the 9th floor of the Hilton Hotel in Irvine, CA . . . which is right across the street from the John Wayne Airport and not very far from the ocean. Had lunch an hour ago with old friends Marilyn, Chris, and Donna who are part of the genius Unite2FightParalysis team responsible for this gathering.

Who are we?  People who want to fight for a faster cure.  People in chairs, people who love people in chairs, people who have some skin in this game.  People from all over the world.  Some of us are over 60, and some of us are teenagers.

What are we doing?  We’re going to hang out together and meet a bunch of scientists who are working on a faster cure and let them tell us more about it.  This year the focus is on regeneration, and many of the scientists are working here in California  We’re going to ask them hard questions; we’ve been at this for awhile now and our sense of urgency is only growing.  We need their sense of urgency to grow, too.

Some of us having fun at last year’s gathering